So, 10 days after Ryan's arrival, things were beginning to settle in, when Thanksgiving day Jason came down with what appeared to be the flu. Unfortunately, it became worse instead of better, and after 3 weeks was finally diagnosed as Adult Onset Still's Disease - a disease so rare most physicians haven't seen it and only 1 in 650,000 people have it. It is a agravating and debilitating autoimmune disease with no cure and not so great treatment options, while not fatal, it is still to be seen what kind of changes our life encounter due to its progression.
Jason had yet to start his trial treatment drug, but has been on corticosteroids for the past 3 weeks with marked but not full improvement.
What used to be simple tasks such as opening a water bottle have become difficult due to the joint inflammation and destruction that this form of rheumatoid arthritis initiates.
We have high hopes that this will be his only encounter with a flare and that the disease will go into remission forever . . . their is no way of knowing its course or the severity of its future symptoms . . . therefore our future plans are in a jumble as we don't know Jason's future workability.
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